Monthly Archives: July 2011
MECFS The life of those who have it and the families of those with MECFS
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a long-term chronic illness that effects 20,000 people in New Zealand alone, millions would wide. These are the people who have the condition, there are many more than that who are directly impacted due to a family member with the condition.
The family may not suffer the debilitating fatigue and the other symptoms of the illness, but they live with the consequences of it everyday. It is good to remember that the whole family unit is effected when one of its members is unwell.
My wife has this illness, she had it since 1997 she suffers from extreme fatigue that restricts her ability to function even on simple and routine tasks. She can’t sleep through the night, fatigue causes physical pain in her body, she is sensitive to noise and light, the illness is not in the mind it is very real and a physical disability. It is not obvious to anyone who sees her and she often puts on her brave face. Over stimulation and physical activity has a serious effect and can cause relapses into a “worse” level of the illness.
Things we used to do together become things in the past, no more do we go for long walks together, or have late nights out with friends, church or other meetings are avoided as even in small gatherings there can often be sensory overload.
Other effects are…
- Reduced income, an increased mortgage and medical bills.
- Limited social connections
- Rarely venture too far without long-term planning and pre-rest with long-planned recovery time.
- Have to plan spontaneity.
I say this not to moan, but to raise awareness of the condition. Governments should invest in research to find a solution/treatment for this illness.
If you are in New Zealand please find out more about ME/CFS from the ANZMES website.
One of the most striking aspects of character that a great leader possesses is the strength that comes from a quiet, but strong, sense of humility. They recognize that leadership is not about them, or the position, it is not about having followers, it is about getting the job done.
Qualities of a great leader:
They respect others
They are hard workers
They value dialog
They are not rushed
They empower others
They champion the cause
They lead by example
They look for their successor
They are gracious
They are full of gratitude
They impart hope
They are concerned with detail and the overview
They connect with people
They associate with all levels in the organization
They know their weaknesses
They are accountable
They are forgiving
They are open to opposing opinion
They attribute and acknowledge the source of ideas
They say please and thank you
They have good manners
They are gallant
They recognize that they are not perfect
They do not demand title or respect
They are patient
They are kind
They are generous in all things
They are self-controlled
They are honest
They are slow to anger
They are decision makers
They value people, in word and action
They are inclusive
They are aware of their own shortcomings
They respect the boundaries of others and themselves
They know where the organization is going
They are committed for the long haul
They are not protective of their position
They recognize their own values and they respect the values of others
They abide by the same policies that the whole organization abides too, one rule for all
They take ownership and responsibility
They have a pool of great advisers and mentors
The list goes on. Please add more as a comment.
For more posts on the subject of leadership click here.
Save Hillside Rally, a set on Flickr.
Rally to stop the proposed cut of 40 jobs at hillside engineering. Protect New Zealand’s Engineering sector and promote policy that ensures government procurement that favours local suppliers rather than overseas interests.